In 2013-15, the Scottish Government funded 16 projects proposed by criminal justice partners across Scotland to develop community services for women who offend. Developments were based on existing service provision and to ensure changes could be sustained locally at the end of the funding. Funding varied in amount and timeframes. Most of the projects were undertaken by local authority criminal justice social work1 (CJSW) departments with partner providers, including public and third sector agencies. The national evaluation examined how the 16 women’s community justice services (WCJSs) were implemented and to what extent they contributed towards positive outcomes for women. A further aim was to build local capacity for self-evaluation in WCJSs. Findings were drawn from two phases of interviews with practitioners and women, secondary documents, and quantitative data for 1,778 women who were in the WCJSs between April and December 2014. This included outcomes data for 406 women.

This is a paper produced as part of the PROP2 (Practitioner Research: Outcomes and Partnership) programme, a partnership between the Centre for Research on Families and Relationships (CRFR) at the University of Edinburgh and IRISS that was about health and social care in Scotland. This paper was written by Elaine Monteith from ENABLE Scotland who participated in the PROP2 programme. What this research paper explores: All women are asked to go to the doctor every few years to get a check for cancer but women who have a learning disability don’t go for these checks as often as other women. The paper explore what barriers there are for women attending for checks and also looks at what could be done to encourage women them to attend.

Explores how the Institute for Research and Innovation in Social Services (IRISS) promotes the delivery of cost effective social services in Scotland that will support the achievement of positive outcomes for people accessing support. It identifies a number of principles that underpin the work of IRISS and suggests how these facilitate innovative evidence-informed practice. The approach to evidence-informed practice comprises four pillars of activity. The first pillar focuses on improving awareness and access to evidence and is exemplified by the Learning Exchange, the IRISS Insights series, and audio and video recording. The second pillar refers to strengthening the evidence base and is discussed in the context of work on self-directed support. Improving skills and confidence to use evidence forms the third pillar and is represented by work on data visualisation and peer support for self-evaluation. The final pillar is embedding evidence in organisations, through co-production, creating spaces to test and challenge evidence, and through the development of evidence-based products. Supporting people to share knowledge, learn from each other and to collectively produce new knowledge and solutions is an innovative approach but also one which should be cost-effective. Pre-print. Published in Evidence and Policy, 2014 (10)4 as Embedding research into practice through innovation and creativity: a case study from social services

This is a paper produced as part of the PROP2 (Practitioner Research: Outcomes and Partnership) programme, a partnership between the Centre for Research on Families and Relationships (CRFR) at the University of Edinburgh and IRISS that was about health and social care in Scotland. This paper was written by Raymond Brennan from ENABLE Scotland who participated in the PROP2 programme. This research is an attempt to understand the difficulties people with learning disabilities face around friendships and relationships. Recent evidence produced in the ‘Keys to Life’ highlights the impact social isolation has on people with learning disabilities. This research is concerned with the experiences parents and children have when choosing their options of schooling, and if the ‘Circle of Friends’ approach would make the option of mainstream school less daunting.

This evaluation report is based on feedback from people living with dementia and carers who received an Individual Award from the Life Changes Trust. The Individual Awards Pilot Scheme was run in Argyll & Bute and Edinburgh in 2014-15 and aimed to provide a small amount of additional financial empowerment to a number of individuals whose lives have been affected by dementia, to help improve their well-being and quality of life. A secondary aim of the pilot scheme was to find out what people would spend the Award on when given relatively broad choice, and what benefit that might bring in the short and medium terms.

The Better Breaks funding programme is focused on improving the range and availability of short break opportunities for disabled children and young people, particularly those with multiple support needs, including short break opportunities that families can enjoy together, or which allow parents and siblings to have time away from their caring responsibilities. This is the summary report.

This is a paper produced as part of the PROP2 (Practitioner Research: Outcomes and Partnership) programme, a partnership between the Centre for Research on Families and Relationships (CRFR) at the University of Edinburgh and IRISS that was about health and social care in Scotland. This paper was written by iain Houston from Alzeimer Scotland who participated in the PROP2 programme. What this research paper explores: An explorative case study investigating how completing a life story project affected a person with dementia.

Systematic review produced by the EPPI-Centre in 2015.This systematic review aimed to evaluate the effect of HAART and ARV monotherapy on liver disease progression and liver-related mortality in individuals co-infected with HIV and hepatitis C, including in patients with haemophilia.

This is a paper produced as part of the PROP2 (Practitioner Research: Outcomes and Partnership) programme, a partnership between the Centre for Research on Families and Relationships (CRFR) at the University of Edinburgh and Iriss that was about health and social care in Scotland. This paper was written by Alan Gilmour from Glasgow City Community Health Partnership who participated in the PROP2 programme. This research aimed to gain an understanding of how training and information support contributes to positive outcomes for carers. It provided a range of information to answer specific questions such as: • Do carers feel that their needs are identified appropriately at different stages of their journey? • Does training contribute to the carer’s outcomes? • What are the barriers to carers engaging in training?

Report 69 published by the Social Care Institute for Excellence (SCIE) in November 2014. This research, commissioned by the Department of Health (DH), set out to identify what could be learned about current policy and practice in self-neglect, experienced as a highly challenging aspect of contemporary adult social care.

This is a paper produced as part of the PROP2 (Practitioner Research: Outcomes and Partnership) programme, a partnership between the Centre for Research on Families and Relationships (CRFR) at the University of Edinburgh and Iriss that was about health and social care in Scotland. This paper was written by Geraldine Ditta from Alzheimer Scotland who participated in the PROP2 programme. People living with dementia are at risk of becoming socially isolated and disconnected from their local communities. Reactions from others on being told someone has dementia can have a significant impact on the person with dementia’s sense of self. This study sought to explore the perceptions of people with dementia in relation to attitudes within their communities and how they subsequently respond. Semi-structured interviews were carried out to examine how they feel about their lives with dementia.

Social Care Institute for Excellence (SCIE) Report 71 from SCIE Roundtable held on 12 February 2015. The aim of the Social Care Institute for Excellence (SCIE) roundtable discussion was to identify, celebrate, support and learn from community-led activity.

Social Care Institute for Excellence (SCIE) Report 72 from SCIE Roundtable held on 5 March 2015. This roundtable session explored the kind of leadership required to make the Care Act a success.

This is a paper produced as part of the PROP2 (Practitioner Research: Outcomes and Partnership) programme, a partnership between the Centre for Research on Families and Relationships (CRFR) at the University of Edinburgh and Iriss that was about health and social care in Scotland. This paper was written by Sarah Duff from Alzheimer Scotland who participated in the PROP2 programme and is a research study exploring the experience of group yoga classes and music with those affected by dementia

CCPS is the Coalition of Care and Support Providers in Scotland. Their mission is to identify, represent, promote and safeguard the interests of third sector and not-for-profit social care and support providers in Scotland, so that they can maximise the impact they have on meeting social need.

The Dementia Services Development Centre (DSDC) draws on research and practice, from across the world, to provide a comprehensive, up-to-date resource on all aspects of dementia.

The core purpose of the Scottish Centre for Crime and Justice Research (SCCJR) is to carry out high quality, internationally recognised research in relation to crime and criminal justice.

SCLD brings together some of the most respected practitioners and thinkers from across the learning disability sector who work alongside people who have learning disabilities and their families and carers.The team at SCLD is focused on delivering real change through influencing policy, identifying and sharing evidence and good practice and challenging public attitudes. SCLD aims to be a knowledge hub – offering support, information and new ideas about learning disability in Scotland.

British Institute of Learning Disabilities services help develop the organisations who provide services, and the people who give support.

Capability Scotland campaigns with, and provides education, employment and care services for disabled children and adults across Scotland.

Chest, Heart and Stroke Scotland aims to improve the quality of life for people in Scotland affected by chest, heart and stroke illness, through medical research, influencing public policy, advice and information and support in the community.

This publication presents information on support to carers and in particular respite care services provided or purchased by local authorities in Scotland over the financial years 2007 / 2008 to 2014 / 2015.

As part of the implementation of the Equal Partners in Care (EPiC) Highland Carer’s Strategy 2014-2017 it was agreed to undertake a review of respite for Adult Carers of Adults (aged 16+). Independent consultants were commissioned by NHS Highland through Connecting Carers to undertake this work. There are four groups of people – totalling an estimated 200 people - with whom conversations have taken place during the review: Carers and staff from carer support organisations – more than 75 carers have given their views Health and social care workforce – we have met with just over 50 people who have given their views and shared our initial findings with more than 60 others Respite providers – we have met with staff from 15 organisations that are providers of respite Those staff responsible for overseeing the commissioning, planning and administration of respite.

The Short Breaks Fund helping to make breaks better and brighter for unpaid carers and cared-for people in Scotland. Launched in 2010 for one year, the fund has now been running for five years and has proved to be a lifeline for many carers. During the past five years the Scottish Government, through Shared Cared Scotland has distributed 12,547,409 to 697 projects to deliver innovative, tailor made breaks to groups and individuals.

ARCH, the National Respite Network and Resource Center in the United States of America identified that evidence-based research on respite care has, to large extent, been lacking. Across ages, needs and settings, respite is based upon the premise that providing caregivers periodic relief from daily, ongoing caregiving responsibilities will directly benefit them in terms of their physical health, immediate and long-term psychological health, and social-emotional relationships with family members. These benefits are assumed to result in secondary benefits for care receivers and even larger societal benefits in the form of cost benefits or improved employee productivity. Some research studies point to the merits of these assumptions. However, evidence-based research supporting this premise - or going beyond it to demonstrate how to best provide respite care that results in maximum benefits - has not been available. This report presents the findings of an expert panel composed of academics, researchers, service providers, advocates, policymakers and administrators representing a range of age groups, disabilities and professional disciplines. Over a period of 18 months the panel explored the current status of respite research, proposed strategies to overcome barriers to research, and developed a plan to encourage rigorous research in key areas.

This End of Project Report describes an innovative Transition to Work Programme for young people with autistic spectrum diagnoses and is the result of a pilot programme developed by Lothian Autistic Society (LAS) and Scottish Outdoor Education Centres (SOEC) and made possible through funding from Scottish Natural Heritage (SNH). The pilot had the twin aims of developing employability skills and exploring the therapeutic value of the outdoors. 

The ‘Dementia: More Than Just Memory Loss’ report, was published in 2016, and set out some of the key issues affecting people with dementia in Wales, in particular: • A widespread lack of knowledge and understanding of dementia amongst professionals and the wider public. • A lack of flexibility to effectively meet the needs of people living with dementia and their carers. • A lack of co-operation between services creates unnecessary difficulties and barriers for people living with dementia and their carers. The authors of the report called for a range of actions to address this, and there has been some progress, however, despite a range of changes across society at a policy, practice and community level, there is still a long way to go to transform services and drive the cultural change needed to effectively meet the needs of people affected by dementia.  The author of this report has consistently focused on the importance of meaningful outcomes for people with dementia and their carers, to ensure that their lives have value, meaning and purpose. This is fundamental to ‘Rethinking Respite’ and to delivering the Welsh Government’s vision of ‘a dementia friendly nation that recognises the rights of people with dementia to feel valued and to live as independently as possible in their communities as outlined in the new Dementia Action Plan for Wales. 

This research compares the different approaches to supporting carers of people with dementia across the UK, US and beyond.  Carried out by the University of Birmingham, this work explores the role and experience of carers in different national contexts, highlighting good practice examples and making policy and practice recommendations. Unsurprisingly perhaps, the report highlights just how much we have in common with other countries in trying to make available effective, personalised supports against a backdrop of increased demand and diminishing resource.  Interestingly, the report explores the language of ‘respite’ which it suggests has ‘negative overtones’ and proposes a more creative approache to service provision is needed.

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