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Rural Health Mission has promising goals


Rural public health care is choked nationwide for a number of reasons. To name two, provisioning of services is very top heavy and many major programmes continue to be conceived and run uncoordinatedly. But Abhijit Das finds promising prospects in the formation of the National Rural Health Mission.




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Epilepsy: defogging the demon


Some studies estimate that roughly 10 million Indians may be suffering from epilepsy. But social stigma and economic barriers are keeping treatment out of reach for the majority. Unlike polio, which has a national eradication programme, epilepsy treatment has seen no such focus yet, finds Varupi Jain.




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Bringing hope to the rural disabled


Since 1988, SANCHAR has worked to improve the lives of the disabled in rural West Bengal. And with the increasing resources available by law to assist the handicapped now, SANCHAR is working to make sure panchayats tap into these to help their community. Rina Mukherji reports.

24 June 2005 - Sanu Ghosh was around one and a half years old when a visit to SSKM Hospital in Kolkata to treat an attack of pneumonia saw him diagnosed as a patient of cerebral palsy. But then, his daily wage-earning parents from the rural outskirts of the city could hardly have been expected to arrange for the necessary rehabilitation of their little son. Fortunately for them, the Society for Appropriate Rehabilitation for the Disabled (SANCHAR) traced him out when he was four, and even detected a hip dislocation that nobody had noticed until then. Today, not only does Sanu attend school, but can manage to seat himself there, thanks to a chair designed by SANCHAR. A similar contraption for his home enables him to manage his daily domestic chores. At school, he uses his mouth to hold a pencil to write, and can read and write nearly as well as any child of his age.

Arup Sani was struck with polio at the age of three, resulting in the impairment of his left leg and right hand. The son of daily wage earning parents belonging to Krishnarampur village in South 24-Parganas, Arup was adopted by SANCHAR when seven years old. The provision of calipers and crutches under the government's scheme enabled Arup to attend the village primary school. Arup is now 19, and studying at the higher secondary level. He is not only getting educated, but also teaching three hearing impaired children from the neighbouring village. Besides, Arup is helping a visually challenged child, Mafijul, studying in the second grade, as a writer during the latter's exams.

Very few people can identify 21-year old Sujata as a disabled young woman, given her confidence. And yet, Sujata could hardly move ever since she was struck with polio at one and a half years. Thanks to SANCHAR's home-based programme, Sujata not only helps her family make puffed rice for sale, but has taken advantage of the vocational training imparted to be able to stitch her own dresses. She is currently learning embroidery even as she broadens her knowledge of dressmaking to earn an income.

These are but examples of the work taken up by SANCHAR on behalf of more than a thousand disabled persons in rural areas. Starting in 1988, SANCHAR launched itself with field support from CINI (a non-governmental organization working in the field of health) to work with disabled children. At first, there were only three or four children that the organization worked with, in a couple of villages. Today, SANCHAR operates in 75 villages spread over 4 blocks - Falta, Bishnupur I and II, and Thakurpukur-Maheshtala, bringing assistance to 819 disabled persons and 774 families. It has been a long journey, but as Director Tulika Das concedes, "The Disabilities Act of 1995 has proved a shot in the arm. With so much being offered by the government now, it is not too difficult to convince communities and Panchayats to take the initiative and give a fairer deal to the disabled."

The organization works at three levels: the disabled individual, his/her family and the community. At the family level, SANCHAR personnel provide the necessary training to the parents and family-members as regards handling of a physically or mentally challenged child. Physiotherapy is provided for free by a professional to enable the child to handle his/her own chores. In cases where a child is unable to move out of the home to attend school, SANCHAR personnel actually arrange for the child's education at home.

"The Disabilities Act of 1995 has proved a shot in the arm. With so much being offered by the government now, it is not too difficult to convince communities and Panchayats to take the initiative and give a fairer deal to the disabled."


Editors' Note: The author has separately compiled a list of key facilities that can be accessed under the provisions of the Disability Act; click here to access this page. The community-based rehabilitation programme involves sensitizing villagers through villager education committees, members of which comprise Panchayat pradhans and members of the Panchayat, liaising with school authorities to provide the necessary facilities such as ramps and suitable chairs for the challenged and allowing clinics to be operated for their benefit. SANCHAR also facilitates the provision of identity cards, stipends and the like by getting Panchayat pradhans to apply and arrange for the same. Wheelchairs, hearing aids and appliances are given free by the government to all those whose incomes are below Rs 5000 a year. "All that we do is spread awareness among the persons in the village community about the facilities available", says Das. Tying up with Mobility India for the past two years has also helped Sanchar in this respect.

"We especially provide technical know-how for the building of school ramps. The incline should never be too steep, lest the wheelchair user rolls down." It is to the credit of SANCHAR that nearly all schools in the 4 blocks in which it works have ramps to cater to the disabled, whereas most educational institutions and libraries in Kolkata lacking these, despite government funds being available for the purpose.

Rehabilitation through vocational training is what SANCHAR has especially been working towards when dealing with the disabled. Here, training is imparted in vocations that complement the traditional occupations prevalent here. For instance, brush-making being a common cottage industry here, many mentally challenged youngsters have been trained in the vocation. The hearing or visually impaired youngsters interested in starting on a new enterprise have been imparted training in making packing boxes for these brushes.

Sometimes, interest and talent may also determine the kind of training given. Physically challenged Krishna, for instance, always showed an uncanny talent for needlecraft since childhood. After being given the necessary training, Krishna has been taking on embroidery jobs to cater to the market and is earning a steady income. He is also training some others in the village to help him in the business.

SANCHAR
Director: Tulika Das
A-2/6 Diamond Park, Joka,
Kolkata 700104,
West Bengal.
Tel: 91-033-24975625.
e-mail: sanchar@vsnl.com Not resting on its laurels thus far, the organization looks forward to changing the negative attitude of communities with regard to the disabled. The low priority to the disabled in national planning is also a matter of concern to SANCHAR. "It is important that disability figures on the agenda of all development plans formulated by the government in this country," emphasizes Tulika Das. For now, the organization is busy reaching out to prevent the occurrence of disability and help in rehabilitation of the disabled in as many villages as possible-including those outside its field area - through Open Day programmes. (Charkha Features)

Rina Mukherji
24 Jun 2005

Rina Mukherji is a freelance journalist, interested specifically in social and development issues.

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Living in a gray zone


Prem Kumar travels across the country, finding disabled children living in isolation and despair, carrying nature's cruel dispensation. But he is heartened as well by inspiring work that so many organisations carry out, and hopes that a brighter future awaits the children, thanks to their efforts.




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Japanese Encephalitis, the deadly virus infection, is not new to Uttar Pradesh -- the first outbreak took place in 1978, and since then every year. But JE is predictable and self-limiting, giving health authorities clear opportunities to save lives. Still, the 2005 monsoon season has seen more chaotic management and more deaths, says Abhijit Das.




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Iodised salt: health or mere profiteering?


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India has recently declared that it has achieved the tag of 'elimination' of leprosy as the number of cases is now just around one per 10,000 people. Still, a major challenge is to reach medicine to remote areas and tribal pockets which still battle with leprosy, and integrating the cured into society, says Ramesh Menon.




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While it is nobody's case that iodised salt should be pushed out of the Indian market, what concerns many people's groups is the one-sided way in which iodisation is being imposed on the people of India. Aparna Pallavi concludes a two-part series into New Delhi's interest in banning non-iodised salt.




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Healthcare as a broad public challenge


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The younger side of AIDS


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Goa's health care challenges


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HIV: Looking beyond numbers


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Study: India sitting on tobacco epidemic


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Dismal breastfeeding rates hampering infant health


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Using popular culture to mainstream AIDS


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Clamping down on second-hand smoke


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Noon meals and schemes not helping TN children


Krithika Ramalingam




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Alarming malnutrition pushing children out of school - I


Tamilnadu leads the country in nutritional interventions and yet has alarming levels of hunger in children. Research indicates that is a very likely cause of poor schooling achievement and drop-out rates, reports Krithika Ramalingam.




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Alarming malnutrition pushing children out of school - II


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From awareness campaigns to real change


Union Human Resource Development (HRD) Minister Kapil Sibal would do well to assess the learnings from two recent and major HIV/AIDS awareness campaigns, before "looking into the ban on sex education", if he really wants to make change, writes Charumathi Supraja.




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A ray of dancing light


Mental illness is an isolating experience which shuts off those affected from experiencing the fun and laughter of everyday life. Kolkata Sanved is working to change that, writes Shoma Chatterji.




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Growing focus on palliative care


Kerala's palliative care movement shows health services can go well beyond the biomedical model of health and be seen as an affirmative act of living with dignity. Freny Manecksha reports.




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A ray of dancing light


Mental illness is an isolating experience which shuts off those affected from experiencing the fun and laughter of everyday life. Kolkata Sanved is working to change that, writes Shoma Chatterji.




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Reaching the unserved in cities


The failure in India is the major reason why the UN cannot meet the Millennium Development Goal of halving the 2.6 billion in the world without sanitation by 2015. South Asian countries resolve to try harder. Darryl D'Monte reports.




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TB: Dangerous comeback


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Tamilnadu's striking progress in welfare


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Planning families, planning progress


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No liquor, no drinking?


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India’s sanitation puzzle: Missing the complete picture?


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Nowhere near to being a healthy nation


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How long before we can address mental health issues humanely


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Surviving stigma: HIV care and the aftermath


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With road rationing, Delhi fights air pollution


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